Search for: "National Organization for Rare Disorders"
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29 Feb 2016, 3:39 pm
National Organization for Rare Disorders (NORAD) – “Every day in America, 30 million people wake up to fight the battle with a rare disease. [read post]
10 Apr 2018, 8:35 am
New Provision Creates Exception to Damages Remedy Under the newly passed amendment, physicians and their new employers are shielded from damages for providing information and care to patients with a rare disorder, as defined in accordance with the criteria developed by the National Organization For Rare Disorders, Inc., or any successor organization. [read post]
28 Oct 2008, 7:10 pm
" The program has been hailed as a great breakthrough, by the National Organization for Rare Disorders. [read post]
28 Feb 2019, 2:12 pm
The National Organization for Rare Disorders (NORD) organizes Rare Disease Day in the United States. [read post]
12 Feb 2013, 8:31 am
On February 28, 2013 we observe the sixth international Rare Disease Day, coordinated by EURORDIS and organized with rare disease national alliances in 24 European countries. [read post]
28 Feb 2011, 6:30 am
Activities The National Organization for Rare Disorders is sponsoring Rare Disease Day activities across the country. [read post]
3 Dec 2013, 1:12 pm
On December 2, 2013, the Office of Inspector General ("OIG") published an advisory opinion in which it considered whether a charitable organization's (the "Requestor") proposal to provide monetary assistance, including Medicare premium assistance, to financially needy patients suffering from a rare genetic disorder (the "Disorder") violated the Anti-Kickback Statute ("AKS") or the prohibition on beneficiary inducement under the Civil Monetary Provision ("CMPs") of… [read post]
21 Jan 2011, 6:39 am
The program, titled “The Economics of Orphan Drugs – Why Successful Cures Bring Challenges for Patients and Payment,” will be posted on the internet here, and featues Peter Saltonstall, President & CEO of the National Organization for Rare Disorders, Frank Sasinowski, Chairman of the Board at NORD (and Hyman, Phelps & McNamara, P.C. [read post]
29 Feb 2012, 10:00 am
Sieving, M.D., Ph.D., director of the National Eye Institute On the fifth annual Rare Disease Day, the National Eye Institute (NEI), a part of the National Institutes of Health, joins patients and organizations around the world to raise awareness of rare diseases, celebrate advances in treatment, and pledge continued support of rare disease research. [read post]
10 Dec 2010, 9:01 am
In August 2008, at the Democratic National Convention in Denver, Hyman, Phelps & McNamara’s Frank Sasinowski, the current chairman of the National Organization of Rare Diseases ("NORD"), had the idea to start a Congressional caucus on rare and neglected diseases in order to have a forum for issues that matter to the more than 25 million Americans with rare or orphan disorders. [read post]
16 Feb 2010, 7:11 pm
In developing the expanded list of conditions, Social Security held public hearings and worked closely with the National Institutes of Health, the Alzheimer’s Association, the National Organization for Rare Disorders, and other groups. [read post]
12 Apr 2018, 8:46 am
The statute looks to the National Organization for Rare Disorders, Inc. to maintain a database of diseases considered “rare disorders. [read post]
19 Feb 2010, 12:23 pm
The new conditions range from adult brain disorders to rare childhood diseases. [read post]
7 Mar 2024, 8:25 pm
Sasinowski —In 2009 — 15 years ago — the National Organization for Rare Disorders (NORD) announced the first U.S. recognition of Rare Disease Day. [read post]
13 Jul 2009, 12:42 pm
If you, or someone you know, is suffering from severe Ehlers-Danlos Syndrome, consider contacting the National Organization for Rare Disorders (NORD) for additional information on the disorder. [read post]
11 Apr 2012, 7:58 pm
The conditions include certain cancers, adult brain disorders, a number of rare genetic disorders of children, early-onset Alzheimer’s disease, immune system conditions, and other disorders. [read post]
18 Apr 2012, 8:01 pm
Some of the conditions on the program list include rare genetic disorders, certain types of cancer, early-onset Alzheimer's, specific brain conditions, and immune system disorders. [read post]
16 Jul 2010, 9:39 am
The latest legislative push to address rare and neglected disease issues has been spearheaded by the National Organization for Rare Disorders (“NORD”) and Dr. [read post]
4 Oct 2023, 7:00 am
These threats create a Manichaean reality, in which unless the U.S. pacifies sites of disorder, domestic liberty is itself imperiled. [read post]
17 Oct 2011, 11:00 am
This process damages organs and causes pain. [read post]
