Search for: "National Organization for Rare Disorders"
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2 Aug 2012, 10:00 am
Koroshetz, M.D., deputy director of the National Institute of Neurological Disorders and Stroke (NINDS). [read post]
12 Jul 2011, 10:41 am
Dickinson was awarded the Food and Drug Law Institute’s Distinguished Service and Leadership Award in 2009, the National Organization for Rare Disorders’ Public Health Leadership Award in 2005, and has received several FDA and Department awards for legal services. [read post]
12 Oct 2022, 5:01 am
That year marked the founding of President Lyndon Johnson’s National Advisory Commission on Civil Disorders, better known as the Kerner Commission after its chair, Illinois Governor Otto Kerner. [read post]
12 Nov 2017, 3:57 am
More than 100,000 veterans have reported serious health effects following exposure to burn pits, including neurological disorders, rare forms of cancer, reduced lung function and pulmonary diseases. [read post]
8 Sep 2011, 7:12 am
Karst – The National Organization for Rare Disorders (“NORD”) announced the submission of a Citizen Petition to FDA requesting “that a documented policy be established regarding the review of potential treatments for people with rare diseases. [read post]
26 May 2023, 8:53 am
Rare conditions can’t be studied using animal experiments because scientists can’t recreate the diseases in animals, but scientists are developing organs-on-chips using cells from patients to understand these diseases and test possible treatments. [read post]
18 Dec 2009, 7:50 am
But in one significant case, the court opened the door for military veterans to blame their crimes on post-traumatic stress disorder. [read post]
4 Dec 2019, 9:05 pm
But by the time the vote occurred, HELP Committee members heard favorable recommendations from some 40 organizations that influence these kinds of votes, including Friends of Cancer Research to the National Organization for Rare Disorders (NORD) to the National Patient Advocate Foundation. [read post]
24 Nov 2014, 5:32 am
Gadolinium (Gd) is a rare earth element. [read post]
19 Apr 2013, 2:45 am
The National Organization of Rare Disorders (NORD) provided the names of 16 patients who became the initial members. [read post]
21 Mar 2011, 1:12 pm
Casey “has broad support among the medical community, patient advocates and biopharmaceutical companies,” such as the Pablove Foundation, Kids v Cancer, and the National Organization for Rare Disorders, “would strengthen a cost-neutral FDA program giving biopharmaceutical companies an incentive to develop treatments for rare diseases that are often less profitable than treatments for more common medical conditions. [read post]
21 Jul 2021, 3:29 am
Usher syndrome is a rare genetic disorder that causes deafness “due to an impaired ability of the inner ear and auditory nerves to transmit sensory (sound) input to the brain (sensorineual hearing loss) accompanied by retinitis pigmentosa, a disorder that affects the retina and causes progressive loss of vision,” according to the National Organization for Rare Diseases. [read post]
26 Jun 2018, 10:31 pm
Hepatitis A is rare in the United States, with 30,000 to 50,000 cases occurring each year. [read post]
11 Jan 2018, 3:10 pm
Hepatitis A is rare in the United States, with 30,000 to 50,000 cases occurring each year. [read post]
21 Mar 2008, 12:14 am
This type of colorectal cancer is the exception to the rule and is considered a rare event. [read post]
31 Aug 2014, 9:07 am
There are other gallbladder disorders, including cancer, but it’s fairly rare. [read post]
18 Feb 2013, 9:35 am
Blood pressure falls, and vital organs don’t get enough blood. [read post]
28 Apr 2012, 2:59 am
Courtney Rowe, USDA's press secretary, in a rare memo to news organizations, said there have been "an unfortunate amount of misleading articles" on the BSE incident. [read post]
8 Jun 2011, 2:28 pm
The National Organization for Rare Disorders has recognized Decum’s Disease as a chronic long lasting condition with limited treatment options. [read post]
7 Apr 2012, 10:40 pm
Infections also may lead, although rarely, to miscarriage or neonatal sepsis. ? [read post]
